Pain shapes a woman into a warrior…
The follow up visit with the specialist was scheduled a few days after my return from Germany. The day was finally here and numerous thoughts about the outcome had tortured my soul. The ego was playing tricks on me and I had to remind myself that 90% of our troubles start with our thoughts. This one could easily get away from me, if I gave in to entertaining and contemplating these thoughts. I would lie if I said that I wasn’t nervous and afraid of what I deemed the final prognosis. Somehow I felt that this one would shed the final light, that it would bare the answers and that years of wondering while a chronic disease was going untreated would emerge from the darkness. I prepared the best I could, expecting the worse, but hoping for the best. It was out of my hands and more than ever, I had to believe, and muster faith. I felt prepared and calm as I was sitting in the small examination room, and I prayed as I was waiting for my nurse practitioner to enter.
The door finally opened and she entered the room saying hi. I immediately tried to scan her verbal and non verbal behavior for any clues, any hints that would prepare me for the words about to come out of her mouth. As if I couldn’t have waited another ten seconds, she was about to tell me and eliminate the guess work, but I tried to detect a vibe to prepare, to have a ten second advantage of what was to come. It was obvious how strong the tension of the unknowing had been, and it came to full realization of how it had developed over all these years and the burden that it brought. I was prepared to hear it, good or bad, it would be my truths and determine what was to come.
She first confirmed that I most definitely have RA and there was no mistaking about it, but we never talked about how wacky the results were. I remembered back to the first time around, when the initial rheumatologist made it a point to emphasize how much higher my results were compared to the normal, acceptable numbers. It was scary and I had no clue what that even meant. I still don’t know what the consequences are. Is there a faster downward spiral, do you have the disease in minor ranges or is it full blown? Was I going to demise much quicker than the next person, I’m not sure of what the prognosis was? I never knew and I still don’t, I don’t know if I need to know.
Next she confirmed that all other levels were within normal range. I didn’t know in detail what was all checked, but again I didn’t need to know. I was relieved and I was ok, what I didn’t know, would bring me no worries. This had been my motto for all these years, ignorant bliss, but I knew it was no longer true and I was here to get answers. This was not going away, not yet anyways and I had to educate myself more. So far, so good and things were moving along.
What came next, seemed to be the biggest surprise of all times as she looked at me with disbelief. The X-Rays of my hands and wrists revealed NO joint damage SO FAR. I’m saying so far because anything can change at any given moment, but it seemed as if it was a miracle to her. For eleven years I had battled this ugly disease and I spoke about the excruciating pains, and the times of remission in my prior post HERE. She could hardly believe it, as I surely should have some sort of damage as a result from this disease. Was I a medical miracle, it sure felt like it from her reaction. The X-Rays revealed no damage and a few little bumps on my pinky fingers were dismissed to inflammation and hardened calcium from the white blood cells trying to repair the joint. They had been there for some time now, getting worse with physical work and at times they were feeling stiff.
Clue number 1: Too much physical work.
Surely it was the onset of my fingers deforming and I thought that the crippling disease was ready to kick it up to the next level. Once again, the ego was spinning a story fit to provide misery without fail, but now I knew the truth about these little bumps and the other thing I know, is that the ego is no friend of ours. The bottom line was that there was no damage and it was the biggest news of the day. Further she discussed treatment options with me and we had arrived at the point of a prescription. Chemically altered drugs that would suppress the symptoms and keep the pain levels at bay. The thing I didn’t want to do the begin with, and the thing that had left me no choice but to seek medical attention in the first place. It was the pain levels that became intolerable and why I went to seek her help. I didn’t know how to function and do my job any longer, but I was feeling pretty good these days and the prednisone had done it’s trick or had it?
To be continued….
🙂
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Glad to hear that you are doing well (with no discernible bone/joint issues)! diet, exercise, attitude must help. Or some Logan/X-men factor. Or maybe glucosamine supplements ( apparently farmers and ranchers used this way before it became popular)
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Thank you so much. I think it mainly attitude and I have more work to do when it comes to the diet and exercise part. It’s hard to exercise when you’re in pain already.
I have tried glucosamine before and still sometimes take it. It helps with a different form of arthritis but little with an overactive immune system that attacks your joints. Still, I feel it can’t hurt any either.
Thank you for your suggestions and great input.
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Interesting and positive, that you haven’t developed more until now.
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True and I know it can change at any given moment. I’m blessed and grateful.
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You left me hanging again!!!!
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Sorry but there is sooo much, maybe two more posts. Rest assured I’m ok 😉
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A healthy cell has high magnesium and low calcium levels. If you’re not taking Magnesium…you should consider it. They have it in liquid form…a few drops under your tongue each day. Be well.
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Thank you very much dear, I heard references to magnesium before but have never followed through. I will this time. Thank you very much.
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Glad you are doing well. What a positive outlook about the power of the mind as well.
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Thank you so much dear, I just don’t think we have any other choice. The more upset we get, the more we actually hurt ourselves. Sure there are things I don’t like either, but sometimes we just have to pick our battles and decide if it is worth it.
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I’m glad you are doing well, despite the pain. Nice news. Have a hug dear friend, and know I care and am thinking of you.
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To have people like you in my life makes all the difference and gets me through the tough times. Thank you for being there and for being you. Much love and another hug 😉
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Damn ego making us think things are worse than they actually are! Glad you’re ok!!! Hugs!
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Thank you my dear friend. I read a good book called “The power of now”by Eckhart Tolle and he talks about the ego and how it is not our friend. 90% of our troubles start with our thoughts and most issues never ever come to fruition. Control your thoughts and bring awareness to what you are thinking and you hold the demons at bay. Hugs
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Omg!!! Eckhard Tolle is one of my favorite authors!! How the pain body can lay dormant, but even the slighest content its familiar can revitalize its identity. Being the witness of the thoughts helps bring them to neutrality.
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Exactly….you know what I’m talking about 😉
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What a warrior you are! You really are an amazing woman.
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Awe thank you Kris. Just doing what I have to and you’d be amazed of how strong you can be when being strong is all you have left. But then you already know that and look at what you are doing day after day. You are nothing short of a warrior my dear and a great, mighty fine one you are. Glad to share the journey with you
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BIG squashy gentle hugs!
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Much appreciated xo
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Always told you you are brave…
🤗🤗
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Haha no other choice that’s it 😉😉💕
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RA is a horrible thing. My mother had it. But she managed to live a normal life despite the pain. Be strong Sweetheart. Hugs ❤ ❤ ❤
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It truly has its times. Right now it’s better again but too soon to tell what is really working and what is not. The last year was tough since the majority was one giant flare with daily pain and I will see what’s next. Thank you for your support and for sharing. I am determined to live as much of a normal life as possible. Hugs and much love ❤️
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Even warriors have to put their feet up sometimes 🙂
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Haha and wish they could walk on clouds 😉
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I had RA very severely and it went into remission, not thru meds but thru natural means…I also practice focusing for pain control…https://www.nearariver.com/just-focus-near-river-bj-rae-eagle-encouraging-words/…https://www.nearariver.com/miracle-happened-near-river-bj-rae-eagle-encouraging-words/…bj, author of near a river, http://www.nearariver.com…email me at bobbiejrae@gmail.com if you want to chat…
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That is truly wonderful and you confirm what I feel is right for me as well. I can’t see sacrificing one in the hopes to fix another. Thank you for your most gracious offer to help. I will email you shortly as soon as I get a moment to breath. Hugs
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